我有兩個自閉症的孩子, 大兒SS現21歲,輕到中度自閉, 從前評為輕度智障,最近是智力中下; 小女JJ今18歲, 亞氏保加症, 算是高功能自閉症。我們家族裡並無自閉症的歷史。兩個孩子先後證實為自閉症,我作為母親,也只能盡一切努力幫助他們。 這裡紀錄了生活的點滴:媽媽的眼淚,有憂傷的,也有喜悅的--只願媽媽的眼淚能灌溉寶貝,讓寶貝茁壯地成長......
2010年3月6日 星期六
朋友的煩惱
朋友的煩惱
我們的一位老朋友寄電郵來訴苦,說他剛上中一的大女兒CC,天天對著功課發呆,例如用了80分鐘才做兩題數學題,90分鐘無法寫出一篇100字的英文作文,晚上只是一直坐在書桌磨到天亮不肯睡。他們兩夫婦軟硬兼施,都不得要領。家長跟學校的老師、社工、教育心理學家等都談過,仍無法改變她的態度;然而孩子並非對自己的情況完全無知。結果朋友看見太太每天晚上兩三點還在跟大女兒掙扎,既心痛又無計可施,把他煩到不願回家,身心俱疲……。讓我們非常擔心他們一家。
我們是看著CC成長,她比SS大兩年,還跟SS同一天生日。她一直是個很溫文的孩子,向來功課很好,所以去年派去第一組別的傳統中學,大家都替她高興。朋友兩夫婦都是教育界,對孩子們非常疼愛也教導有方,我們是從來沒想到會出問題。
由於朋友沒有談到細節,我們只能勸他先找出孩子是不是有什麼困難,也許未能適應中學課程,會不會不理解英文課文,跟同學的相處如何……;同時做父母的也要調節心態,給點空間時間孩子,自己也盡量用輕鬆幽默的態度,修補跟大女兒的關係,因為CC已經是teenager了,開始有自己的一套,我們不應還用以往教小朋友的方式教導她。萬一CC真是跟不上學校的要求,那麼父母也要改變策略,甚至可以為孩子另找合適的學校。畢竟孩子才是最重要的,我們都知道香港教育的荒謬,斷不能因為功課而影響了全家的情緒。況且孩子們也需要學會自己承擔後果,想想我們中學年代,父母何曾如此緊張我們的功課。雖說時代不同,今天的孩子們要面對更多的挑戰和競爭,但是他們比上一代有更佳的土壤,欠缺的可能是經歷風雨、磨練的機會。
今天跟另一位朋友談起此事,這位朋友深明苦況,因為幾年前她也曾因為上中學的大兒子天天搞對抗,把她氣得幾乎神經衰弱。可是今天的少年人都很脆弱,父母不敢太硬,怕他們動輒輕生;軟的招數又無效,因為他們更加嘻皮笑臉。這群中年父母都慨歎,雖然自己的學歷不差,但對著這些少年人,往往有「老鼠拉龜,無處下手」之感。
雖然我們的兩個孩子還未出現嚴重的對抗,但是對於孩子們的問題「老鼠拉龜,無處下手」,我們的感受只有更甚。我們唯一能做的,就是盡力做好今天,不為未來過分憂慮。
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For sure it is hard!!My friend's daughter, she was very good in Elementary school, once in grd. 6, she has been changed, no interest on schooling................now 14 years old, she is getting worst.............end up in Girl detention centre.????? I am not sure who's fault???????What's wrong????????I believe one thing for sure>>>>>Teen age is a bomb!!!!!!! A trigger for rebel????????
回覆刪除[版主回覆03/08/2010 23:58:00]Really difficult. The parents have just found that CC is an Asperger! Right now, we think both parents and the school need to learn how to handle/ teach an Asperger.
A radio programme this morning at 881 " 同途有心人" talked about similar problem is due to 思覺失調, consult doctor la !
回覆刪除[版主回覆03/09/2010 00:00:00]Thanks for the information! CC has just been diagnosed as Asperger.
我兒這兩年的情緒也比以往不穩,但正如妳所說,盡力做好自己的本份,也不必過份憂慮!
回覆刪除[版主回覆03/09/2010 00:04:00]剛剛知道CC被診斷為亞氏保加症。目前似乎她的父母首先需要學習接納孩子有障礙。
I believe CC feels bad but cannot control herself. During the last 2 weekends, I attended a workshop on "How to deal with teenager" cos I have encountered similar problems in dealing with my elder son who is now 13 turning 14 soon. Frankly speaking, I do not have high expectations on the workshop but do want to learn more. To my surprise, when I practised the skills and "I" message to my son, he told me more than usual. I felt so satisfied when he said he was happy after talking to me! A volunteer emphasized that we have no "integrity" in front of our kids cos we love them and they are far more important than integrity. This doesn't mean that we have to give in but to give them room and space which the teenagers always ask for. If you trust him that he can do one thing, sooner or later he will succeed. Am still learning everyday. Instructor also challenges us to speak only one sentence but allow our kids to speak 9 sentences and the other way round as we usually do.
回覆刪除Have missed out a very important word in the last sentence which should read, "Instructor also challenges us to speak only one sentence but allow our kids to speak 9 sentences and NOT the other way round as we usually do"
回覆刪除[版主回覆03/10/2010 17:55:00]Very good advice, but not easy to do. We all need to learn to listen, no matter our kids are special needs or not.
支持好的blog~繼續加油~~ . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .
回覆刪除教導孩子真係不是一件容易事!~~~真的要慢慢學習!
回覆刪除[版主回覆03/13/2010 23:11:00]對呀,我們是終生學習。