盼智慧與身量一齊增長
感謝天父的恩典和那麼多叔叔、姨姨的祝福，SS的感冒終於完全康復，JJ幸好安然無恙！星期二趁著JJ的生日，也為了兌現他們這兩個多月來上ABA課所獲得的獎分，我們一家又去迪士尼樂園玩了一天，盡興而返。
讓我們非常欣慰的是，儘管這天的程序跟以往去迪士尼樂園時不同――沒有乘出租巴士來回、沒有住酒店、沒有其他家人……，SS開始時雖然不大高興，卻沒有堅持。甚至這回我們第一次觀看「金色米奇」和「獅子王」表演，連帶等候的時間各需45分鐘，SS也能安坐欣賞，並且無懼於音樂劇巨大的聲響；JJ對於環境有點不安，但是在安撫和鼓勵下，能夠自我調整，總算看完全場。顯然兩個孩子現在對事物沒有那麼執著。
有趣的是，SS病了一個星期後語言上好像突然開竅，不但對答比較流暢文法正確，有時還懂得反駁我們，反擊妹妹，叫我們又好氣又好笑。連昨天去上音樂治療課，老師也察覺SS對答好多了，問我們是否替他進行了「排毒」療程。大抵SS生病那幾天一直嘔吐、不能吃喝，功效跟「排毒」差不多？SS語言能力進步了，自信心也增強不少，這幾天還裝著哥哥的樣子管教JJ呢！
JJ則越來越有「幽默感」，簡直有些氾濫。她不懂得同一個笑話說第三次已經不好笑，還一而再地說上十次二十次，令我們哭笑不得。她開始對身邊的事比較感興趣，昨晚還詳細問我上班後做些什麼工作，這可是她首次這樣問。
上星期日下午，我們一家去了屋苑的會所餐廳，喫了一頓簡便的下午茶。兩個孩子吃完後就在附近玩，我們只告誡他們不要走開，SS幫忙照顧妹妹，然後我和外子看看雜誌，非常愜意！
我向外子感嘆地說：「這是第一次我們在外吃東西而不需要帶傭人看守孩子，雖然只是在會所。」
從前我們一家出外吃飯最少要帶一個傭人，否則根本沒辦法完成一餐。因為每次只有最初十五分鐘是五個人都圍著桌子，十五分鐘後兩個孩子不受控到處走動，只好輪流由兩個大人分別看守他們，剩一個大人進食；其他人客看見滿桌子的食物只有一個人在吃都覺得奇怪，我們卻只能苦笑應對。
兩三年前有一位自閉兒的媽媽開解我說，兩個孩子入小學後，自理、認知能力提高了，家長會沒有那麼辛苦，我當時還覺得不知何年何月才行；如今確實感到孩子們成長了，我們也輕鬆些。
只盼孩子們的智慧能與身量一天天地增長！
So glad to hear that both SS & JJ have such improvement! It's really good to have some free and spare time!
回覆刪除[版主回覆03/27/2008 13:16:00] We have been longing for that!
sjmama ：我同你一樣看見別的小朋友能做到的事，常感覺自己的孩子何時才可以呢？經過十五年的時間觀察，我發覺只要我們不斷努力，孩子也會做到別的孩子可以做的事，只是比他們會遲些成功，但肯定孩子們的智慧能與身量一定會一天天地增長！
回覆刪除[版主回覆03/27/2008 13:10:00]是呀!你的經驗更能說明: 只要我們繼續努力, 再加上多點耐性, 孩子一定終有一天讓我們驚奇!
兩個孩子入小學後，自理、認知能力提高了，家長會沒有那麼辛苦，我當時還覺得不知何年何月才行；
回覆刪除其實一般孩子都是一樣，孩子小時我們也很少出外吃飯，他們不能坐得太久。孩子上了高中後也不想出外吃飯！
[版主回覆03/28/2008 09:04:00]好像人家的孩子都比我們的兩個安坐的時間長一點, 也不會到處亂跑.
以前我們還不知道SS的問題時, 曾跟其他有差不多年齡孩子的朋友一起吃飯, 結果人家的孩子都能好好吃飯,我們兩夫婦卻疲於奔命地追逐SS, 還被朋友責備我們沒有好好管教SS呢
小朋友的進步, 絕對是父母的一枝強心針, 無論是小小的進步, 對我們來說已是很滿足呢! 大家努力呀!
回覆刪除[版主回覆03/28/2008 09:05:00]是呀, 只要有進步就好了!
sjmama，兩個孩子的表演說明了妳們的努力一點也沒有白費，相信以後的驚喜還多著呢！
回覆刪除[版主回覆03/28/2008 09:05:00]但願如此!
看到你的文章，登你高興和感動。願神垂看我們的勞苦，使我們的汗水尤如小雨點，培育他們成長，而神的恩典就是溫暖的陽光。
回覆刪除[版主回覆03/28/2008 16:15:00]願神的恩典普灑每個特殊兒家庭!
回覆刪除真係好替你開心，JJ & SS 一定仲有更多嘅進步空間，長大後係佢哋帶爸爸媽媽出街食飯哦！
[版主回覆03/31/2008 09:36:00]"長大後係佢哋帶爸爸媽媽出街食飯" ----非常期待呢!
真係好大進步呢!
回覆刪除[版主回覆03/31/2008 09:36:00](Empty)
Congrats!!Your hard work has paidoff!
回覆刪除Don't know if you remember, I mentioned this to you before, my neighbor's son is a very typical global development delay case, told her many times to go for assessment, but she said, her son is very 'unlike' my elder son, so her son is normal!!! The grandad is a famous Dr., the whole family are highly educated but refused to accept reality, eventually her son got into a top school P.1 because his dad was old boys, a few weeks ago, she came to visit me and kept crying, the P.1 teacher has asked her son to do OT and PT repeatedly since beginning school year, then she confessed the kindergarten teachers have also asked her to do that many times before, but she thought her son would grow out of it!!!
I suggested her son to change school, but her answer is...of course no, so hard to get in etc etc. But I am 100% sure her son can't survive in that school, now I totally give up, their family's stupidity and stubborness would get the boy no where. It's so sad, that boy is very kind and sweet.
[版主回覆03/31/2008 13:42:00]Dear pamam,
As a friend, you've done your part. Let the parents do their own part. If the boy can't survive in the top school, they will probably be informed by the end of this term.
One of our friends recently told us the story about the daughter of her friend. The girl was admitted by a very famous Catholic school in Kowloon Tong. She must be a gifted child, but may be with some ADHD/ Asperger features. After the first term of P1, the school called her parents and requested them to withdraw. The school just doesn't want to handle the case, not even say to provide any advise/ support.
to pamam,
回覆刪除suggest your neighbour to do some supplement trainings like ABA, OT, PT, ST at spare time while not to school.
Among different stages " Prevention , Detection, Evaluation and Treatment" for PDD, never mind they do not admit to assessment, the most important action is go ahead special training and treatments to their beloved son immediately.
Convince them those trainings are beneficial to normal children too, no discrimination and labelling indeed.
我也感同身受, 最近我的小bb也可以安坐直至食完一餐飯, 感謝主!
回覆刪除[版主回覆04/08/2008 23:17:00]那真好!